Earlier this year I had my
grandfather die from a stroke, and during his last two or three weeks of life,
the quality of his existence was solely dependent on those caring for him,
meaning his family and the professional caretakers. Everyone’s issues with the
professional caretakers were that they were quite impersonal, treating Grandpa
as an object rather than human. They would come in his room once, and not make
another appearance for another 18 hours. They talked on the phone and joked
around. The latter is fine at the appropriate times; however play should have
come after work, after they had already met Grandpa’s needs. There was not much
anyone in the family could do about this, aside from complain to the doctors or
try to supplement Grandpa’s lack of quality care with sentimental statements,
telling him that we were there if he needed anything and sharing memories.
Honestly though, this only went so far due to everyone’s conflicting schedules
and conflicting views about how he should have been cared for. For instance,
one of my aunts spoke with the doctor and banned anyone else in the family,
besides herself or my grandma, from visiting Grandpa after a certain time. This
meant that unless my aunt decided to stay the night, we were right back at square
one, meaning that grandpa had no one to keep him company for long hours. Even
during the day, when he had several people keep him company, certain family members
caused strife arguing amongst themselves, debating what steps to take next
regarding my grandpa’s health or blaming each other for his worsening
condition. One person would walk into the room and say something like “Hey play
this classical cd; it’ll stimulate his mind and calm him,” while ten minutes
later, another relative would walk in and say “What are y’all doing? What’s
wrong with y’all? Turn all that stuff off. He needs to rest.”
In spite of all these examples, I
am not angry at anyone, because I understand that seeing a loved one in such a
heavily-sedated state and not being able to truly help is a painful thing to
deal with. Since everyone had to care for Grandpa’s needs on top of the
everyday stressors of life, I imagine that they were all thinking on their
feet, which led to the lack of coordination. All of that said, I love the
inspiration behind “Love Effects a Future [sic].” I think this app is
especially useful for people who do not have, do not trust, or cannot afford
licensed, trained caretakers and thus rely on their own skills to care for
loved ones. LEAF would hopefully make
family members’ responsibilities a bit less intimidating and a bit more
manageable. My favorite feature on the app was the virtual medicine planner
because with the physical ones, it can be hard to actually keep up and stay on
track with certain medicines, or they can get lost or even placed into the
wrong date and time due to, say, exhaustion from the person stocking the
medicine. The idea behind the app was
quite sad, but very moving, so good job Wenting and Amy, if you guys ever read
this. Also the app itself was very sophisticated and I can tell a lot of thought and planning went into the feature of the app. My only criticism is that this should be less of a social media platform,
because those already exist; besides, as we mentioned in class linking this to
any social media would breach some sort of medical confidentiality codes, as
these sites would ask for permission to view certain aspects of the app, which
might include medicine.
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